Archive for the ‘Diabetes’ Category

Something Stupid

Tuesday, January 24th, 2006

There’s nothing that quite sums up a mistake with diabetes management than:

“Umm… Hi Nancy, I just did something very stupid.”

Somehow “stupid” seems like a tremendous understatement. I’m okay, this happened back in December, but I had to send my logs over to my care team today and my note just cracked me up. XD

Basically, I had been extremely tired when I woke up that morning and accidently mistook my Humalog insulin with my Lantus. I only take 3 units of Humalog at maximum, and 16 units of Lantus in the morning only. So I gave myself 16 units of Humalog that morning. I realized what I had done as soon as the plunger reached the bottom of my syringe. So I immediately bolted down a full glass of orange juice and ran to call the Diabetes Center for a game plan. And of everything I could have said, I choose to say “I just did something stupid.”

LOL! At least I’ve only done that only twice in the years I’ve had diabetes, they assured me that they have other patients do it all the time. (Ouch.)

In other news, today I had to take my resume in to one of the local staffing agencies so I could see if I could get a job. To disclose my diabetes, or not to disclose my diabetes. I’m perfectly healthy, no neuropathy or other complications . . . other than my blood glucose drops like a stone if I do anything too strenuous. I ended up disclosing it against my better judgement, just so they wouldn’t try pushing me into a strenuous job.

Instead, I walked out with contact information on becoming a Database Specialist. Starting wages of $12/hr but I don’t know that I know enough yet to be able to do the job. They’re asking for a BS in Computer Science, and all I’ll have this Fall is an Associates. Don’t get me wrong, I’ll be able to do many of the requirements when I leave school, but I can’t do them all quite yet. The bullet about “Windows programming” is the point that worries me the most. Yes, I do have to take Visual Basic, but I still have more prerequisites to do before I can attempt it. I called anyway, made myself sound like an idiot on the Human Relations voicemail, and have spent the rest of the evening worrying about it.

I know it’s pointless to worry, but I can’t help it.

Much love to everyone, I’ll try to reply to everyone tomorrow morning.

Lantus

Wednesday, July 6th, 2005

Had a checkup today with Nancy at the diabetes center and found out I did a bit too well on my control. My A1c came back at 5.9% – which she said was a bit alarming. Once again, I had my insulin dose adjusted.

Basically that means that the bouts of hypoglycemia I’ve been experiencing are edging towards dangerous levels. It gets too low and I may end up in serious trouble. In fact, when I walked into the center today, my blood sugar was down to 43 mg/dL (2.38mmol/l). I really should be 70 – 120, which is a bit too low for my own good.

Anyway, courtesy of my doctors I came home with something new: a free vial of Lantus insulin. I also had the offer to take an introductory pumping class, though I took a raincheck so I can see how I do on Lantus first.

Hopefully they’re right and this will make me feel more normal. I’m not sure what that means, but I do have to admit I have been feeling pretty weird lately. The results from my A1c probably explain it a bit.

Also, thanks to AmyT for her comments and link to her site. ^_^ I’ll comment once I get my homework done.

but I’m still me

Thursday, May 26th, 2005

I’m a liar.

I’m a bald-faced liar.

I keep saying that my diabetes doesn’t bother me. Well, I’m a liar: my diabetes does bother me. But it’s not the way everyone thinks.

It’s how everyone around me behaves. Sometimes it feels like discrimination — the way people act around me — and sometimes it feels like they’re stifling me. I lost my last job because of diabetes. I couldn’t enjoy my day at the beach because either I was preparing for a meal or my friends in the kite club wanted to talk to me. Or rather, talk about my diabetes.

Thing is, every one of them had something to say and not a single one knew what they were talking about. I thought Type 2 was the unknown disease, but instead that’s what everyone knows. There were even a few former friends who were looking at me the entire time like I’d grown a second head.

I’m not sure what hurt worse, what everyone assumed, or the fact some of them were avoiding me. I wish mom hadn’t told them… I really do. I understand why she tells everyone, but does she have to tell everyone!? That especially goes for members from my dad’s side of the family. They’ve basically disowned me, so why the hell is it their business??

Wasn’t telling Maryann enough? She used to be our neighbor back when we were growing up. Mom told her. Big fricking mistake. That woman is a walking encyclopedia of diabetes myths and she’s subscribed to them all. She was loopy when we were kids, but she’s worse now. And she still has this inane need to lecture.

I’m almost glad I don’t get to see Poppa and Caroline much anymore. Back when I was diagnosed, the weight fell off me until I practically looked anorexic. Caroline was excited and pleased by how skinny I was. She didn’t seem to care about how sick I was or how awful I felt or how close I came to ending up being admitted to the hospitol. And she’s kept up the comments. I don’t understand why Poppa won’t speak up… he raised my Aunt Karla, who was diagnosed as a type 1 when she was 12. He knows diabetes.

I reached out because I wanted to have a social life, but instead I feel more alone now than ever. I had my diabetes under tight control, but now I’m subconsciously sabotaging myself. Hell, I even forgot to take my final dose of insulin last night!

Whatever happens, I have to get back in control. Pure and simple. I guess I have to go back to thinking like I did back when I was diagnosed: this disease is a friend test. And I just found how a lot about my former friends.

Now this is a great Valentine!

Monday, February 14th, 2005

I’ve done it. ^_^ My HbA1c came back at 6.2%!

Basically that’s a diabetic blood test that shows you how well you’ve been controlling your blood sugars over the past 2-3 months. I dropped from an unhealthy 8% clear down to a really healthy 6.2%!

It’s a lot of work and takes a lot of careful eating, right amounts of insulin, and exercise to get it that low. But, it’s better than risking any of the complications. So I’m absolutely tickled! *dances!*

Explanation

Thursday, November 11th, 2004

Okay, now that Wordpress is working for me as I want it to, it’s time for a little update on my situation.

Yesterday, I went to the Diabetes Center at Saint Mary’s Hospitol here in Grand Rapids to check on my medication and to just generally get a better picture of my diabetes as a whole.

Talk about Earth-shattering.

First of all, let me say they were excellent. Accepting the offer Catherine’s Care Center made to send me to an Endocrinologist was the best decision I ever made. They gave me more information on Diabetes than I’ve ever dreamed of finding out. I even got to meet with the director of the center, who informed me that she handpicked her entire staff. All of them either are diabetics or care for someone who is – so they all can empathsize with their patients. Very very good.

But then they dropped the bombshell on me.

I was diagnosed as a Type II Diabetic over 13 months ago. I worried about Avandamet and Glipizides and their cost. I put up with the stupidity doctors and the media cop when it comes to that type of Diabetes.

I spent 13 months treating a version of Diabetes I didn’t have.

That’s right: I’m a Type I Diabetic and I should have been on Insulin from the very start.

*cue soundeffects and screams of much frustration*

Anyway, I’m now on a plan aimed at Type I and I’m shocked at how much better I was feeling. I simply didn’t realize I was feeling so off until I got a few doses of short- and long- acting insulin in me. Weird. Cool, but weird. In a good way…

I ended up crashing today, however. I went for my mile walk, came home, and completely forgot to get a snack. Instead, once I finished my cool down, I took Kaze and laid down on my bed for a little bit. I woke up sick. -_-;; And supposibly I’d “probably never get that low” – well take a look at 41 mg/dL, dumbfucks!

Really, I thought from the way Metro Health was so firm in their diagnosis, there had to be a concrete difference between the two types. Instead, the doctors at Saint Mary’s said in regarding the test for Type I Diabetes – and I quote: “A positive will tell us for sure, but a negative will tell us nothing. You could be Type I and it can still come back negative. We’ll actually know better in a week from your bloodsugar checks.”

Uh-Huh. I’m still leary of doctors, but I know I can trust my Glucometer. Provided I calibrate it properly, as per the directions, it’s pretty close. And all my current checks are coming back nice and low (well, provided I don’t overdo it on the potatochips or anything)… sometimes a bit too low. lol

Now just to get this damn Kent Health plan to work. Apparently, I had to stick this funky sticker on my card. Thing is, no one told me. So here’s hoping they don’t refuse to pay due to that stupid little thing. Really, I’m so fed up with them I’m really tempted just to hurry up and look for a job. Mom’s still sitting on her dead ass and claiming to friends and family who ask that she’s waiting on calls when all she’s applied to has been Spectrum Health’s patient transport position. Jasson hasn’t been really answering anyone who asks. *sigh* Love them, BUT. Of course, I’ve been avoiding answering myself… since some of my family is a little dense on the uptake of medication costs. But now that I’m on insulin, which is far cheaper, I’m pretty much ready.

I have to call tomorrow and pray I can get through so I can ask my questions regarding the application, but I’m not sure what good it’s going to do. I think it’d almost be faster just to demand mom take me around to apply for jobs.

Oy vey!

Diabetes Rant

Thursday, October 21st, 2004

To begin, let me just say that needles and injections suck.

Further, last night sucked monkey balls.

And Diabetes sucks even worse.

Diabetes runs in my family on both sides, so it wasn’t a huge surprise a year ago today when I finally got a diagnosis that explained why I was suffering from severe fatigue, thirst, and infections that would not clear up. I had been suspecting anemia (which also is pretty common in my family) or diabetes, just from the specific battery of tests they ran me through.

I wasn’t expecting it to be Type II Diabetes, which is the kind most often to effect the Elderly and Obese. My risk factors were far more in favor of Type I. Of course, they can’t treat me like someone who got the ugly end of the genetic lottery.

Nope, instead I keep finding myself being treated like some lazy bitch who does nothing but sit around and eat bon-bons and fast food all day. The first doctors decided to consign me to deteriorating health, even saying that they’d need to get me on medication to quote unquote “prolong [my] liver function.” They offered no suggestions on lowering my bloodsugar or lessons on even how to test my blood.

So, eventually getting tired of their crap, I dubiously switch to another doctor at an office I had been warned provided low quality care.

Heh, Dr. Reaume is the best damn doctor I’ve ever had, save for the pediatrician I had when I was a kid. He worked with me to find affordable means to get the care and education I needed, even switching me to insulin, which is finally proving to be an effective treatment. Yes, he’s been great for me – Or I should say, Dr. Reaume was great for me.

About a week ago, I received a lovely letter from the State of Michigan that basically stated that to continue receiving Medicaid benefits for medical services, I have to find another doctor. So, the hunt is on, but does the State offer any kind of help. Fat chance.

So now, I’m hanging.

What’s more, is that I really can’t get a job either. One of my meds is $279 per bottle of 150 pills. Medicaid covers it, but only if I’m unemployed. I get a job, I loose Medicaid and find myself faced without a way to afford my medication. The only alternative is finding myself an advocate somehow and seeing if I can get on the drug manufacturers’ assistance programs. (Which I was originally on, until the first doctors’ office insisted I drop it in lieu of Medicaid! )

Well, yesterday (day before yesterday by the time I hit “Enter”) Murphy’s Law struck and I had another fun little episode in this learning curve.

I ate dinner at 5:30pm, with more of the glucose raising things than I normally should have like Scalloped Potatoes, bread and butter, etc. But… I’d been a bit low all day, so I figured a bit of indulgence wouldn’t hurt me any.

At 7:30, I came back from a walk with my dog, and ended up with a slight tremble that indicated I again was low. Being of sound mind and body, I grab a few pieces of Halloween Candy and then spot a nice, big, juicy apple. Normally, that’d be way too much for a snack.

At 9:30pm I tested my bloodsugar, which was at 63 mg/dL. A bit low for me, but no biggie. I had some of my diabetic-friendly yogurt.

I tested again at 11pm before I went to bed, which said I was at 180 mg/dL. A bit higher than it should be, but it isn’t the highest I’ve been.

At 2am I’m still awake, anxiously brooding over really stupid things. I was feeling strung out, bitchy, and not the slightest bit tired. I don’t know at what point it struck me to test again, but I eventually hauled myself out of bed and went to get my test kit.

I knew the moment I touched it I was “crashing” – my vision suddenly blurred, I broke out in a sweat, and I began trembling so violently I could barely handle my lancet device. This test came back at below 50 mg/dL.

Thank goodness for that Halloween candy is all I can say. After eating some candy, I woke mom up and told her. A phone call to the closest ER revealed that bloodsugar under 50 is where they consider it an emergency.

Since Mom was making a 2:30am breakfast for me (not to mention I’ve gotten to loathe ERs with a passion) I told them I’d see how I felt after that and then come in if it still wouldn’t stay up. So after some breakfast, Adult Swim, and another test at 4am later puts me clear up in the 200s. Back to bed… only until 8am.

Mom demanded I call Dr. Reaume’s office and ask to talk to someone about this. I’ve come to the conclusion… there is no Dr.’s office on earth that can hit 100%. Nope, there’s always gotta be something they suck at. Dr. Reaume’s office is returning phonecalls. Two phonecalls wanting advice over an event that could have landed me in the ER and they never called me back. :-/

*sigh* So, the hunt is on to find someone before I have another of these bizarre crashes as well as see if – somehow – I can locate myself an advocate.

Tell me when the fun starts.

Check my ego in at the door

Saturday, October 16th, 2004

Not to be outdone by a childhood friend, I picked up a A+ Certification Study Guide book yesterday while on a shopping spree at the mall. Lets just say for everything I knew, there was 5 things I didn’t. Up until that point in the computer store I was feeling like a hot shit, then I get home and begin reading the book.

Dammit. LOL

The book is a bit out of date, which makes me feel a little better. It doesn’t cover Windows XP, nor some of the more powerful goodies out there like the new RAM – among other things. Still, remembering just how much of a newbie I still am was sobering. Then, as if to underscore that – my computer crashes and crashes hard. XD I went to Safe Mode and several scans later I had it back up and running. Not sure what the hell happened, but this beast has so many weird issues with conflicts and bad drivers (that also can’t be updated) it could be most anything. -_-;;

I really need to figure out how to juggle my Avandamet and a job so I can begin putting together my new machine. (Which is the main reason I had been feeling so good before I picked up the book.) I found all the parts I wanted for my home-built machine and they weren’t all that different from the places on the internet I’ve been looking at. I’m still going to be ordering the bulk of it off the internet anyway, so I’m not paying for the “purty” packaging.

Anyway, it was girls’ day out at the mall yesterday. I got two new bras and five new panties at Victoria’s Secret, some new Lavender scented body lotion at the Bath and Body Shoppe, and then browsed the Anime’ at Suncoast. I almost picked up Silent Mobius, but after burning almost $70 between the first two I didn’t feel I had another $15 to spend on it. I didn’t get to go clothes shopping either; but as it was, we didn’t get home until 7pm anyway. So I suppose that’s going to have to be a trip for later.

My new Insulin regimen is going well, provided I can keep my bloodsugar from crashing and burning. Don’t get me wrong, it’s nice to be able to occasionally eat chocolate again, but not necessarily under those circumstances. I’ve also gained weight *sigh* It’s probably a side effect of the insulin therapy, but I feel really bloated and uncomfortable. But, on the whole, my bloodsugar is starting to come down which is a good thing. I just don’t want to gain too much weight, since it makes controlling bloodsugar much harder. I doubt I’m going to be able to stop the Avandamet, though, but it’s something to ask my Doctor once my body finishes adjusting.

In Addendum

Sunday, October 3rd, 2004

Oooh, I found a generic version of the insulin Dr. Reaume wants me to take for only $18! ^____^ And it’s right at Wal-Mart! *dances* So now it’s decision time on where I want to fill my prescription.

Now this is the type of decision I like. ^_^

Ah, the glory of Insulin

Saturday, October 2nd, 2004

Diabetes: 2, Sally: 1

The work of getting my bloodsugar lower is still an ongoing battle. No matter how lightly I eat or how much I exercise, I still can’t achieve anything consistently lower than 160 mg/dL – and then only when I eat a minimum of carbs. (Basically modest salads and meat for each meal.) Wednesday, I had an appointment with Dr. Reaume and informed him I was game for whatever he’d like to try with me. So, he’s decided to begin weaning me onto insulin. He’s prescribed injections of Humulin 20/30, 20cc in the morning and 10 in the evening. He’s advised me to stop taking those horse pills they call a glipizide (Yay! No more gagging! ^__^) since those lower bloodsugar too. Crashing (getting my bloodsugar dangerously low) isn’t something we want happening!

So that brings me to a new challenge: Giving myself injections.

The good thing is that I’m less afraid of the cost of insulin after checking on my Avandamet and then comparing cost. ($267 for a month’s supply versus $30-something for insulin.)

I was pretty devastated after discovering that cost. I spoke with my caseworker with the FIA about my Medicaid and discovered that basically I have a choice to make: Get a job and loose Medicaid – thus having to pay for that ridiculous prescription out of pocket. OR I stay on Medicaid and remain unproductive. Now that I’ve begun checking up on the cost of insulin, I’m gung-ho to fully wean myself onto insulin and off Avandamet. I can swing $30 something for Insulin and then whatever the syringes cost; yes, it’d add up quickly, but I’d be able to claim that on my taxes.

Anyway, back to injections. They originally wanted me to sign up to take my Diabetes class again, but I don’t need to be told what I can and can’t eat and how to read labels again. Knowing there had to be other ways to learn how to give myself injections, I told them to hold off and I’d call them if I had to schedule. I ended up asking my friend, Jodi, who’s a nurse for Spectrum Hospital here in Grand Rapids when she came over for dinner today and she said I could give a jingle when I was ready. *happy dances* So that’s all good. Tomorrow I’m planning on visiting Wal-Mart and getting a price quote from them on my supplies. While I know they tend to have more price fluctuations, they’re closer to me than most everything else. Anyroad – Maybe once I can get myself entirely on Insulin, I can safely work on the job situation. ^_^

Poison Paradise

Sunday, July 11th, 2004

I think this has been the fastest layout I’ve ever done. I recently rediscovered one of my old radio stations, so between that station and my usual rock station my radio has been on almost constantly. Well, yesterday one of the DJs at the old/new station must have been in a darkish mood… he/she played “Sweet Dreams” by the Eurythmics followed by “Closer” by Nine Inch Nails and then rounded out the trio with “Toxic” by Britney Spears. Talk about music to drop into the gutter by!

After that, this layout just kind of barfed itself right out of my brain. 4 dedicated hours start to finish on Paint Shop Pro, followed by another good 5 – 6 hours of playing with the CSS and HTML to position everything the way I wanted. The bubble interface was fun as hell to make too! ^_^ I’m thrilled with the way this looks!

Anyway, I’m trying to be as W3C compliant as possible for this layout… since, like Jasson, I’m not sure when I’ll be able to update again. I’m not sure about the compatability of Iframes, but Mozilla.org suggested that they were more compliant than some of the other options. Nearly everything I’m seeing is showing that it should work with all the latest browsers, so I guess I’m going to stick with it. I still need to update my friends list, format the way comments are displayed, and fix a few other things. (EDIT: I ran the layout through the validators at W3.org and both the HTML and CSS came out as compliant! *dances*)

Well, tomorrow the first of the challenge series begins. Despite the interest, that’s only a few people and a lot of them are more excited about later challenges. I’m really afraid that after all that planning, only a handful are going to do anything. T_T Oh well, if that happens; next time someone whines that there’s nothing interesting happening or that it’s boring on the Lounge I’ll blast them with the fact that practically no one joined my challenge.

Well, my diabetes is… frustrating. It’s under control… it’s no longer really fluctuating. I just need to lower it now. My doctor is talking about switching me to Lantus Insulin to bring me down to really tight control, which I really don’t want to do. It’s not that I fear needles… it’s the price! I’ve already gotten a notice from the State of Michigan, notifying me that if I somehow loose my eligibility for Medicaid, I shouldn’t expect to get it back. (God Damn Budget Cuts!) <_ < So any major changes in medication or treatment leaves me a little nervous. Hell, even with Medicaid, it costs me close to $25 to replentish my diabetic supplies. It's better than the several hundred it'd cost me without it help, but with as little as we're bringing in - that's still almost too much. I nearly shot mom last night when she got home from work. I needed something to eat several weeks ago, so I picked up a box of Atkin’s brand cereal. It’s delicious, but a good $7 a box. However, it’s filling and doesn’t cause a spike in my blood sugar. Anyway, I nearly shot her… we haven’t had a chance to go pay bills and she brings home not one, but two boxes of the stuff!! X_x All I wanted to do was wail. It’s quickly becoming clear to me that this town isn’t compatable with needing to be on a special diet. Hopefully tomorrow HomeVesters will finally call my mom back and arrange a meeting. I want out of this town so badly.